International MPS Network

At the International MPS Network (IMPSN), we believe that every person affected by Mucopolysaccharidoses (MPS) and related lysosomal storage disorders deserves access to timely diagnosis, effective treatment, and lifelong support—no matter where they live. Our global network brings together families, healthcare professionals, researchers, and advocates, united in our mission to improve the quality of life for those impacted by MPS.

MPS is a group of rare, life-limiting genetic conditions that can significantly affect the physical and neurological development of children and adults. Many affected families face uncertainty, isolation, and a lack of access to specialized care. At IMPSN, we work to change that by fostering international collaboration, raising awareness, and advocating for better research and healthcare access worldwide. Our vision is to create a future where every person with MPS can live a full, supported life—free from the barriers of inadequate care and delayed diagnosis.

Volunteers are at the heart of our work. Whether it's helping to organize global events, supporting families, or engaging with researchers and policy makers, volunteers play a vital role in advancing our mission. By joining the IMPSN, you'll be part of a passionate, international community working to create lasting change. You'll have the chance to directly contribute to the future of MPS care, research, and advocacy, empowering individuals and families who need it most.

Together, we can make a difference. Whether you’re lending your time, skills, or voice, there’s a place for you in the IMPSN family. Every step forward we take is because of people like you, committed to making a real impact on the lives of those living with MPS.