Tumour Foundation of BC
The Tumour Foundation of BC is a registered nonprofit and charitable organization that has been supporting individuals and families affected with neurofibromatosis since 1984.
Through our support, education and research programs we strive to improve the lives the patients and families living with this genetic disorder.
Neurofibromatosis, or NF as it’s more commonly known, is a genetic disorder that causes tumours to grow throughout the body. NF tumours can lead to deafness, bone deformities, learning disabilities, disabling pain, and cancer. There is no cure.
With no NF experts or specialized clinic available, patients are forced to become the experts in managing their own care. Can you imagine your doctor looking to you for answers and direction on how to treat your illness? That’s what patients experience every day after receiving an NF diagnosis. We are working to change that and would love for you to share your skills and time with us.